top of page

About Us

We started as group of UK based campaigners whose children all have Cystic Fibrosis who set up the CF Buyers Club in 2019 and successfully campaigned with others to make CFTR modulators available in the UK. We have seen first hand how Vertex's drugs can improve lives and we now campaign for all sufferers to gain access.  

The group now consists of campaigners from all over the world, Australia, Azerbaijan, Belgium, Bulgaria, Brazil, Canada, Chile, Croatia, Ecuador, England, France, Germany, Greece, India, Kazakhstan, Latvia, Luxemburg, Mexico, Montenegro, Namibia, Netherlands, New Zealand, Northern Ireland, Norway, Poland, Ireland, Romania, Russia, Spain, Scotland, Serbia, South Africa, Swaziland, Switzerland, Sweden, USA, Wales, Peru.

.....and is growing by the day!   

There are 70,000 people with CF worldwide and only about half are benefitting from life changing drugs. This is immoral and needs to be addressed. 

bottom of page